@lyn02 With our last, our 20 week scan resulted in a diagnosis of tetralogy of fallot. Cue 5 weeks of emotional rollercoaster as we waited for an appointment with the cardiologist to talk next steps.
My advice is unsatisfying: wait to talk to the cardiologist before heading into the emotional abyss. Easier said than done, but I wish I had that advice back then.
Our cardiologist went through all the evidence, downgraded the diagnosis and worked with us on a plan.
I know your diagnosis is different, but you’re only a few days away from speaking to someone with the experience to guide your next steps.
You’re going to get through this.