nicu

  1. T

    Mentally struggling not being able to hold my baby

    I had my baby via c section at 33 weeks n 2 days. She was 4lbs And is very healthy they said I'll be able to hold here in 2 to 4 days. I'm struggling so hard I cry every night, I just wanna be able to hold my baby. I got a c section 24 hours ago and I've only spent a total of 3 to 4 hours with...
  2. G

    Feeding my baby

    I gave birth to my daughter almost 7 weeks ago at 30 and 0 because I had an arterial bleed and a uterine rupture. The last thing we need to do before we can go home is master oral feeding. She’s taking at most 4ML by mouth with a bottle and having trouble sucking when she’s at the breast. I feel...
  3. S

    They called us in for the conversation we very NICU parent dreads

    We are on week 10 of my 24 weeker’s NICU stay. Her course has been complicated by a difficult resuscitation at birth requiring 26 minutes of chest compressions, and then seizures starting a week after her birth. Recently, the team came to the conclusion that her spasms are not seizures, but...
  4. B

    Anticipating 6-8 week NICU stay in August with a 2 y/o at home - advice or information?

    I am 6 months pregnant with my second child and was informed a couple days ago baby has a critical congenital heart defect known as truncus arteriosus as well as a VSD. After meeting with MFM and pediatric cardiology, we were told there is no reason not to anticipate I would carry to term at...
  5. F

    Decreased appetite and increased sleeping

    Hey all. Baby born 33 weeks on sept 24. Currently 7 weeks adjusted. Noticed he’s sleeping more and eating way less. Used to down 150ml every 3 hours. Now he’s only getting 50mL before passing out. Called our pediatrician and she wasn’t concerned at all. Could this be a growth spurt or something?
  6. S

    Risk of NEC in 6-month premie?

    Hi everyone, my daughter is currently 9 days shy of 6 months actual. She was born at 35 and 0 weeks via planned C section bc of my placenta previa/potential accreta. She was 6lbs and 1 oz with APGARS of 8/8 but was taken to the NICU because of mild respiratory distress. She was discharged on day...
  7. K

    Is NICU follow up necessary when seeing a pediatrician a few times a year?

    My LO is 19 months old. Born at 31 weeks. She’s gone 2-3 times to the NICU follow up. Last appointment cost $1200. She was evaluated as on track, and sees her pediatrician every 4ish months for physicals. I really can’t afford to pay $1200 again, I am still paying off that last Visit. Of...
  8. T

    Discharge with feeding tube

    The doctor called today and said in a couple weeks we may be discharged with a g-tube. I feel like this is the end of the world for us. We’ve been working on feeding for 4 weeks and our girl is 41+5 now, born at 27+3. They said around 44-45 weeks if she’s not better with eating we will be...
  9. L

    We are finally home after 150 days in NICU (born 24+1, 1.5 lbs, had PIE, PDA, ROP, pulmonary hypertension and BPD, left at 10 lbs and 1/8 L oxygen)

    We are home for 3 days now and finally got some time to write something. Little Aaron was born at 24 + 1 after my wife's sudden placenta abruption and was intubated immediately. He was on various ventilators during the first month of his life (1 week on HFO, 3 weeks on JET, and 1 week on CMV)...
  10. B

    35 weeks premie: currently 9 weeks but 4 weeks adjusted… need help please!

    1) 9 weeks old and dealing with intense gas issues almost GI? Poops look normal yellow and ebf! All happened right after vaccines and been going on for about a week now and develop a poor latch in the process (wasn’t an issue before) this has stalled his weight to only gaining an ounce and a...
  11. M

    Am I wrong ?

    My baby was born at 25 weeks + 2 days he’s currently 29 weeks 6 days gestation age so 30 weeks tomorrow and I live about 40-hours always from the nicu me n my fiancé share a car n always go later at night when he’s done working to go see the baby so about 11 is the time we get there. I always...
  12. M

    C-section recovery w NICU baby

    This is so hard trying to recover from C-section while my baby is in the NICU ! I know the staff is there for the baby, but it’s like they don’t realize the mom is TORN UP!! I need a bed to rest in, a bathroom that is easily accessible from inside the NICU unit, nutritious food, and support...
  13. J

    Travelling with 8 months (6.5 months corrected)

    We are planning to take our 34 weeker baby for a 2 weeks vacation in Europe at the beginning of summer. We are from Canada and this will be baby’s first big trip. She will be 6.5 months corrected then. Her paediatrician is okay with the plan. Any advice on what should we keep in mind in...
  14. P

    Another day, another question

    Hazy Lungs in X-rays Our child has been in the NICU coming up on 2 months. He was born 37 weeks +2, IUGR (5lb 2 oz). Has always had respiratory complications such as retractions and struggling to take breaths. His chest X-rays the past few weeks have consistently shown hazier lungs. They’ve...
  15. D

    Aspirating During Feeds

    My 39 + 6 baby girl was born on December 5 at 34 weeks. My water broke (PPROM) at 26 weeks and she stayed in until a scheduled C-section at 34 weeks. The biggest complication was underdeveloped lungs due to a lack of fluid for those weeks after my water broke. She made great progress at first...
  16. H

    Ab pain after C-Section (7mpp)

    I’ll start off by saying I have a follow up appointment schedule with my dr. So in August of 2023 I had an emergency C-section under general anesthesia at 25+0. The incision is transverse on the outside and vertical on the inside. (Baby weighed 490g and is thankfully doing okay). Ever since...
  17. E

    Big brother going to prek soon! How can I best protect baby?!

    My oldest is starting prek this month and I didn’t even think of the germs he’ll be exposed to and bringing home…. Baby was in NICU for 32 days and will be 4mo soon. I was told to sanitize for 3mo but I’m still doing it. I’m so so terrified of him getting sick. We’ve done well so far but today...
  18. T

    After the NICU issues?

    Did any of your kids have long lasting issues after the NICU. Specifically those of you whose kids needed surfactant? My son was born 34+2 (OG thought to be 36+2) and needed two rounds of surfactant. He was intubated for 5 days and spent 2.5 weeks in the NICU. We’ve been home for about 2...
  19. S

    Can I prevent my baby from getting a trach??

    My baby was born at 24 weeks, intubated for 12 days and has had 3 surgeries all neuro related (reservoir, shunt). He went home from the nicu at 4 months old and had already not been needing any oxygen for awhile. He's now almost 7 months old and had 2 hospital trips both due to GI issues. The...
  20. M

    PPROM Update - Birth Story (kinda positive!)

    Unicorn PPROM Story, 28w to 36w induction for vaginal breech birth ended in c-section and NICU stay (water breaking early and staying pregnant afterwards) Hello! I was looking all over for PPROM stories (water breaking early) when it first happened to me, so now I’m going to share my...
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