nicu

  1. L

    Little Z

    Hi, all! My little Z is a NICU graduate and I just wanted to share my experience and encouragement. He was born a month early and had some issues feeding and was very small. My partner had a difficult pregnancy and was very I’ll with preeclampsia, which prompted a C-section in late March. He...
  2. J

    Happy Mother’s Day!

    Hey 👋 As we got ready to head into the NICU this morning I was a little disappointed that my wife’s first Mother’s Day post delivery was still going to be in the NICU. I asked her if she was doing ok and she said yah it’s not ideal but our LO made me a mother regardless of where we celebrate...
  3. D

    My story. As shared on Facebook originally

    The NICU. I’ve kept our story pretty much off Facebook. Since it is NICU awareness month, I felt like sharing. The one word I would describe my whole experience would be lucky. I had preeclampsia with William, however it was pretty mild and was at full term. Throughout my pregnancy I was...
  4. K

    If you or your partner was hospitalized for pre-eclampsia prior to delivering your little one, tell me about your experience

    I am currently 27w2d, have been hospitalized for a week, and will be here until I deliver. I’ve had a hard time finding other experiences like mine. If you experienced this, I’d love to hear: What week+day were you admitted, what week+day did you deliver, and how many days total was your...
  5. B

    Shyloh has been diagnosed with NEC

    Hello y’all, Shy has been intubated. She has some inflammation in her intestines😞 They think we caught it early enough tho. They started her on 3 different antibiotics that seem to be working so far. These next 2 days are going to be long and stressful, and I’m already a mess😭😭 She has a tube to...
  6. M

    36 weekers

    Had my Didi twin girls two days ago at 36+2 and they have been in the NICU since for breathing and a feeding tube. Baby A 4 lb 15 oz and baby B 4 lb 5 oz. After a traumatic c section, I’m beyond devastated to see them in this state. Any words of encouragement or similar stories people can...
  7. B

    Hurt Feelings because of Preemie/Newborn Health Precautions (and some of my own hurt)

    Some general background info: My LO was born at the end of July at 32 weeks, and is now 16 weeks (8 weeks adjusted). He came home mid-September after a 7 week NICU stay. I had a traumatic emergency c-section and have only been able to pump 3-6 oz a day since he was born (supplementing with...
  8. M

    My IUGR story so far…

    Posting to share my story and see if others have had similar experiences and how it turned out. 25+1 FTM. We were diagnosed asymmetric IUGR at the 6th percentile at 24+1. Baby is weighing 543g, his abdomen and head look fine but arms and legs are tiny, in the >1%. Negative NIPT results, no...
  9. M

    Reservoir Q’s

    I just found out that my 29 weeker (he’s 3 weeks old as of yesterday) has an “urgent but not emergent” need for a reservoir—he had his 3rd brain scan today and the dilation is very severe and progressed quite a bit since last week. When the dr showed me the images, I nearly crumbled—it looks...
  10. A

    Little guy won’t sleep at night

    Hello, we had our son who is 4 weeks old now, 5.6 lbs at 34 weeks and was in the NICU for 3 weeks. Our issue is he sleeps well during the day but at night he grunts and I mean GRUNTS non stop and won’t sleep. What can we do to help our little guy sleep more? He is always so hungry but our doctor...
  11. J

    Baby to her own room at 10 weeks?

    Hi, Y’all are my only good “mom group” and since I’m hyper concerned about everything because she was a preemie, I thought I’d ask here. When did you move your baby to their own room. My girl has never really taken to the bassinet and sleeping at night is a total nightmare to us all. She was...
  12. B

    Universal Childcare call to arms! -Mod Approved

    Hello friends! I wanted to spread the word about Universal Childcare and how a handful of parents from around reddit have decided enough is enough. We're in the beginning stages of banding together to fight for real change in the US. Are you interested in joining the cause? Do you know someone...
  13. G

    R.O.P. appointments

    I can not for the life of me stand going to these appointments! And to make matters worse, my lo is two still going to this same doctor who seems to have no respect for anyone else's time! My lo was born at 29+2. She was in the NICU for 84 days. We brought her home and of course we had...
  14. K

    Wondering who else has dealt with high acid levels?

    My daughter was born last Tuesday 5/30. She was born at 33 weeks and 3 days but came out very tiny for her age — 2lbs 6oz. Doctor’s primary concern is the high acid levels in blood. Current pH level is 7.43. The doctor believe it’s most either due to an infection, for which she’s on two...
  15. S

    Are there any positive long term outcome stories from babies on ECMO?

    UPDATE: My son came home from the NICU after 46 days not currently on oxygen and not on a g-tube. He did not end up needing ECMO. I had my son at 37+3 last Friday, March 10 in an unexpected c-section as a result of breech presentation discovered sudden low amniotic fluid when we went in to...
  16. R

    Feeding into mucous fistula - can it be done at home?

    Our full term 4 week old has been in the NICU/PICU since birth. It’s a complicated course, but the most recent reason he’s still admitted is that he had a bowel perforation, emergency surgery, and he’s still intubated after a very scary course with ARDS. He’s almost 2 weeks post-op. The...
  17. R

    Babies Won’t Eat

    First, I apologize for this rambling post… I’m not great at navigating Reddit and honestly, feel like I’m at my wit’s My twins (both female) were born at 31 weeks, 5 days after PPROM 24 hours earlier. I got steroid shots and magnesium in the 24 hrs leading up to the birth. Baby A was 3 lb, 6 oz...
  18. A

    How to remember the good times that happened in the NICU? (Long stay)

    Hi All- I posted before I had my baby (B) and everyone was so helpful with questions for the neonatology team! B, our little guy was born at 27/5 with IUGR. Today makes 4 weeks in the NICU, the first 3 weeks were a blur and I don’t remember them at all (I think just trauma brain). Now that...
  19. N

    A year later... Extreme IUGR

    Hello dear NICU parents, A year ago, back in 2022 december I posted for the first time in this community. It is finally time for me to post an update.My baby boy was born a few days after the original post, on 21st of December.I had 3 weeks to prepare mentally for him being a micro preemie and...
  20. I

    Cervix dilated at 27.5 w

    My cervix dilated to 3.7 cm at 27.5w and made it to 28w now with ibuprofen and magnesium sulphate. Any suggestions on how I can hold the baby longer , currently on complete bed rest except for using the restroom. Have any other parents had similar experiences? How did your babies do in the...
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