nicu

  1. C

    Parents of iugr and preemie babies, how are y’ll doing?

    My baby was born at 33 weeks weighing 1.67kg born early due to my extreme cholestatis! My lo is going to turn 15 months actual (12.5 months corrected) weighs about 16.5lbs(close to 7.5kgs) we are super worried about her weight and height. Besides she’s super active, hitting all her milestones...
  2. S

    Full Term Baby, blood ox levels low to mid 90s

    Full term baby born 40+6 experienced respiratory distress of unknown origin that sent her to the NICU. She stabilized easily and has been on room air no canula for 2.5 days and has no signs of distress. Lung X-rays are clear, echocardiogram is clear, swallow studies clear. Baby is nursing and...
  3. J

    Baby won't accept breast nor formula - help!

    My baby started training for breastfeeding last week. His suction is pretty strong, but I noticed that nothing seems to come out of my boobs, and he would grown very frustrated, even though I know I have milk and can hand-express it with ease. The pediatrician came to examine us and saw that my...
  4. J

    Husband forgetting to turn oxygen on

    I don't even know the point of this post. Maybe just a rant. I am very careful with my daughter's oxygen. She is in 0.2 l/min. For about the 3rd time I just went to my daughter who was with my husband and saw the oxygen wasn't on. It wasn't on for 1.5 hours. I could tell as her colour wasn't...
  5. A

    PPROM at 33.1 weeks B/G twins

    After a few days of thinking I was just experiencing incontinence, woke up this morning and decided the “small leaks” were worth getting checked out. Turns out it was definitely amniotic fluid. We’re admitted to hospital for antibiotics and steroids for babies. And sounds like we’ll be staying...
  6. T

    How did weaning off oxygen go?

    Hello! My son was born at 34+5 and is currently 37+5 adjusted. He’s been on 0.3 L of oxygen for about a week now. Apparently there was some miscommunication between the doctors and nurses, the doctors thought he’s been at 0.1 L for days, but he’s still at 0.3 L. I asked to start weaning...
  7. O

    ROP in 9 month old experiences?

    Infant peripheral vision problems Does/Did anyone’s babies (Under 1) have issues with their peripheral vision? My girlie (9m actual) is having some odd symptoms I guess you would say, and myself and her physical therapist are questioning if she may have something wrong with her peripheral...
  8. K

    Pneumomediastinum

    Does any one have any experience with pneumomediastinum? The NICU told me today that my baby boy of 31 5/7 weeks has it. He was born on the 20th with some breathing issues but the X-Rays didn't show anything until today...They were hoping to give him surfactant but now they can't :/. I was...
  9. J

    Feeding Aversion SOS

    Welp Reddit it happened. Our miracle little 550g baby now almost 13 pounds can breath but in 2 days of cue based feeding she now rejects bottles, all of them. We went from 30% bottles to 0% in 2 days. I can’t help but wonder if our nursing staff is just so used to baby’s hating bottles since...
  10. B

    When does the guilt stop?

    Two weeks ago, I gave birth to 2 beautiful twin girls at 30+1. I was diagnosed with severe preeclampsia at 29+0, admitted to the hospital where my water broke at 29+5. They were born into the world kicking and screaming, both well under 3 lbs. They are already showing great improvements, but I...
  11. S

    Cake for 1st birthday?

    Hello, My son was born at 30+0 at 3.4lbs, 16.5in. He endured a 52 day NICU stay, avoiding any major complications along the way (woohoo)! He's now 9 1/2 months old (7 months adjusted) and I'm beginning to brainstorm for his 1st birthday party. I'm feeling conflicted about cake. Since he will...
  12. C

    Born at 26 weeks- constant bradys & reflux

    My daughter was born on Aug 28th at exactly 26 weeks via emergency c-section after incompetent cervix & PPROM. She was on a ventilator for a few days and then moved to a bubble CPAP shortly after. She is now 11 days old and about a week ago she started having bradycardias and spitting up during...
  13. P

    my 27 week baby passed away due to infection

    they told me she has staphylococcus aureus after culture, im in so much pain and distress, she seemed to do well, dirst they gave her (habaren?) im not sure of the spelling but this is how it sounded when the pronounced it, her two fingers were blue then black then only the tips were black, she...
  14. M

    Project NICU Mental Health Awareness Week events 5/24-28

    Hello fellow NICU parents, Project NICU is hosting a number of special events for NICU Mental Health Awareness Week. Postpartum depression is a serious issue especially for parents of children in the NICU, if you don't feel comfortable attending that is cool but I urge everyone to stay in tune...
  15. M

    L&D nurse gift baskets?

    Hi hi! We just had our baby boy 4 weeks ago. He needed some help so he spent about 5 days in the NICU. I had the most incredible L&D nurse, and 2 amazing NICU nurses during our stay. I want to get them something special as a thank you. Any ideas? I’m thinking about $25 per gift.
  16. W

    Really hard day

    The highs and low of the NICU rocked me today. My little boy was born at 34+4 due to pre-e. Yesterday I was crying happy tears since my little one had their first breast feed that was his entire feed! I thought it was all up from there but then today had desaturations that scared me and my...
  17. R

    I am going home after my C-section and am an emotional wreck having to leave them

    Hi everybody. I am a new mom. We have twins in NICU a boy (2lbs11oz) and a girl (2lbs 4 oz) They were born on Wednesday (27th) at 26 wks 4 days. We knew they would be early, I have a septum in my uterus and they were both on the same side. I'd gone into early labor @23 weeks but we managed to...
  18. D

    PPROM’d at 30+2, currently 30+4, getting cerclage removed today

    Hey everyone! I PPROM’d at 30+2 days, and had the opportunity to get both steroid shots in for baby’s lungs, and I’m on antibiotics to fight infection (no infection currently). No cause of the PPROM aside from the fact I had a short cervix and needed to get a cerclage at 22 weeks. Today I get my...
  19. P

    Day 142 in the NICU

    As of yesterday we were at day 142 for our 27 week 6 day triplets. Triplet A and B have been home for 1 month. My wife and I opted to bring home triplet C on low flow O2, and with an NG tube, after he stalled around 50% P.O. Today is day 143 of life for our children, and it just so happens to...
  20. J

    Any ballpark estimates on 8 week NICU bills?

    Our 31+0 girl is slated to stay in the NICU for 8 weeks. My insurance covers 90% of the bill, I cover the remaining 10%. Has anyone been in a similar situation? What kind of price tag am I looking at? And what happens if I can’t pay…? Bonus points if anyone is in NYS and knows of programs...
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