SIUGR baby
- Thread starter eb3
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purplecocoon
New member
@eb3 We had DC/DA twins and twin A was always in the first percentile. We went through all the motions. We now have two beautiful girls who are doing very well. We gave birth at 32 weeks. Twin A was born 662grams and baby B 1.5kg.
Turned out twin a had placenta insufficiency.
There is hope. The girls are now 5 months. 3 months corrected. They’re smiling and laughing.
I really hope things work out for you. I will say a prayer for you and your babies. All the best.
Turned out twin a had placenta insufficiency.
There is hope. The girls are now 5 months. 3 months corrected. They’re smiling and laughing.
I really hope things work out for you. I will say a prayer for you and your babies. All the best.
@eb3 Just adding to the long term hope for you.
I had B/G twins at 31 weeks. Girl was 3# 3 oz and went straight to the nursery (no need for NICU). Boy was 3# 10oz and needed 1 week of respiratory support (BiPAP)
She stayed at -5%ile for height and weight, is now 19 y/o, 5'2" and 100# which tracks with the women in our family.
Boy was 25%ile weight and 95%ile height and is 5'11" and normal build which is much taller than the men in the family.
BOTH are healthy, happy, vibrant young adults who love their college lives.
I had B/G twins at 31 weeks. Girl was 3# 3 oz and went straight to the nursery (no need for NICU). Boy was 3# 10oz and needed 1 week of respiratory support (BiPAP)
She stayed at -5%ile for height and weight, is now 19 y/o, 5'2" and 100# which tracks with the women in our family.
Boy was 25%ile weight and 95%ile height and is 5'11" and normal build which is much taller than the men in the family.
BOTH are healthy, happy, vibrant young adults who love their college lives.
@eb3 What kind of twins do you have? Mine were di/di and identical; each had a different cord situation: Baby A had a v-cord insertion and Baby B had one in and one out, instead of two in and one out.
Baby B was under 10% every time they measured (20 weeks onwards). I had 4+ appointments per week to check cord flow, NST, growth scans etc. It was dizzying. They over-measured baby B; at 36+3 they were born 4 lbs and 6 lbs. I did not think they would both make it until both girls were home with us.
Twins are full of shenanigans. I wanted to be prepared for any outcome, and to know that I had done my part, but the Universe or whatever had its own contributions to make as well. Drink some water, have a nice portion of protein, get some sleep and take a sick day from work tomorrow to maybe go for a walk, the four of you, to reconnect with your values? Or some other activity that tends to bring you joy and clarity? How can you learn on your values and each other while navigating these waters?
Do you trust your care team? If not can you get a second opinion? I live in the U.S. and in my city, the midwives seem to have the best recommendations around finding experienced OBs and MFMs.
I've been through some things so far in this life and am probably more adventurous than your average bear. But the twin pregnancy--it's one of the hardest things I've ever done. Hands down. I salute you in this moment of uncertainty!
Baby B was under 10% every time they measured (20 weeks onwards). I had 4+ appointments per week to check cord flow, NST, growth scans etc. It was dizzying. They over-measured baby B; at 36+3 they were born 4 lbs and 6 lbs. I did not think they would both make it until both girls were home with us.
Twins are full of shenanigans. I wanted to be prepared for any outcome, and to know that I had done my part, but the Universe or whatever had its own contributions to make as well. Drink some water, have a nice portion of protein, get some sleep and take a sick day from work tomorrow to maybe go for a walk, the four of you, to reconnect with your values? Or some other activity that tends to bring you joy and clarity? How can you learn on your values and each other while navigating these waters?
Do you trust your care team? If not can you get a second opinion? I live in the U.S. and in my city, the midwives seem to have the best recommendations around finding experienced OBs and MFMs.
I've been through some things so far in this life and am probably more adventurous than your average bear. But the twin pregnancy--it's one of the hardest things I've ever done. Hands down. I salute you in this moment of uncertainty!
@raaven They are Modi.
I’m just struggling with so many feelings. If I go through with the RFA I feel like I’m murdering my kid. If I don’t do it I’m knowingly putting a perfectly healthy baby at risk. It’s an impossible choice.
I’m seeing a neonatologist and another MFM at the local Children’s hospital tomorrow so I guess we will see what they have to say
I’m just struggling with so many feelings. If I go through with the RFA I feel like I’m murdering my kid. If I don’t do it I’m knowingly putting a perfectly healthy baby at risk. It’s an impossible choice.
I’m seeing a neonatologist and another MFM at the local Children’s hospital tomorrow so I guess we will see what they have to say
@eb3 I was 18 weeks and baby was measuring 15weeks. At 20 week anatomy scan baby was measuring 16 weeks barely. At 22 weeks I developed severe preeclampsia. Baby was measuring 16-17 weeks 200grams at most. I had no protein in my urine I did not see spots I felt fine but my bp was 180/100. They were not able to lower it low enough even with magnesium and had me deliver (stillbirth). Later found out the my placenta was the issue it was old and did not function properly super early , hence baby wasn’t gaining weight. Unfortunately for us there was nothing that could be done. I am now pregnant (10 weeks ) with di/di twins and honestly I am terrified. But I keep my hopes up. Definitely consult with MFM and see what % and what are the survival %. It’s super hard I really hope it turns out well for you
vyrzaharak
New member
@eb3 How are B’a dopplers? If B has some intermittent absent flow, it can still stabilize. We had sIUGR and week 17 and 18 were the worst. We’ve never gone below 5%, but my bigger twin was in the 90%, so the discordance was about 35% at its worse. Things started improving after 19 weeks and I had them at 35+5. Both are doing well now at 4mo. If B’s dopplers look normal or some absent flow, but not reversed, I strongly suggest waiting a few more weeks to see if the baby improves or remains stable. It is a scary diagnosis, but there’s still a lot of hope!
katrina2017
New member
@eb3 Had the exact same thing happen with my wife and our girls. Ended up making it to a scheduled delivery at 34 weeks - 5 lbs and 3 lbs 5 oz. Both are still very small for their age, but developing just fine, if not faster than some other kids their age.
I say this not to rub anything in your face, but to hopefully give you some hope yourself. I remember the day a doctor told us Baby B likely wouldn't make it and how horrible life was for the next few months. He couldn't have been more wrong.
I say this not to rub anything in your face, but to hopefully give you some hope yourself. I remember the day a doctor told us Baby B likely wouldn't make it and how horrible life was for the next few months. He couldn't have been more wrong.
usesoap4life
New member
@usesoap4life Hi there! I continued to have umbilical cord flow issues that was variable. Sometimes it was pretty bad, sometimes it was only kinda bad. The last couple weeks of my pregnancy I was going to the MFM 4 days a week for NST’s. Baby B was still extremely small and I had an anterior placenta so I could never feel him. 2 weeks before I delivered I got my first set of steroid shots.
We had a bad NST and I got admitted. I did 2 days of continual NST’s and got a second set of steroid shots. On May 5th they decided to go ahead with the C section for fear of stillbirth. Baby A was born 3 pounds 14 ounces and Baby B was 2 pounds 9 ounces.
We spent 45 and 62 days in the NICU. Thankfully neither baby needed intubated. Baby B was worse off breathing wise and needed Nasal IMV (one step don’t from intubation) and Baby A needed CPAP (two steps down from intubation). They both went home on oxygen and had to use it for a few weeks before being cleared.
Yesterday they turned 5 months old are are sweet, happy babies!!! B is still much smaller but just and cute!
EDIT: They were born 31+5
We had a bad NST and I got admitted. I did 2 days of continual NST’s and got a second set of steroid shots. On May 5th they decided to go ahead with the C section for fear of stillbirth. Baby A was born 3 pounds 14 ounces and Baby B was 2 pounds 9 ounces.
We spent 45 and 62 days in the NICU. Thankfully neither baby needed intubated. Baby B was worse off breathing wise and needed Nasal IMV (one step don’t from intubation) and Baby A needed CPAP (two steps down from intubation). They both went home on oxygen and had to use it for a few weeks before being cleared.
Yesterday they turned 5 months old are are sweet, happy babies!!! B is still much smaller but just and cute!
EDIT: They were born 31+5
usesoap4life
New member
@usesoap4life Forgot to mention, they were born at 31+5