So you all know me..if you don’t look at my post history we’ve been at this for 230ish days.
Our LO is back on cannula after a bunch of cpap round and we are trying to start feeds again. After so many false starts I can’t help but be worried she’s never gonna get this. She was taking close to full bottles months ago and now she can barely take 10ml’s.
The prospect of a gTube terrifies me, not for the surgery but the intubation. Last time was terrible for her, it took days to get off, she needed decadron. And I just don’t want to undo all the work we’ve been doing to treat her BPD.
They don’t send kids home with NG’s so we are caught between a rock and a hard place. The hospital is zero help for feeding and it seems like all the know how to do is place a gTube.
We moved closer to the hospital this week to try and increase our bottle attempts and it has been a disaster. I’m over all of this, I can feel the gTube mafia circling and I don’t know what else to do here but to give in which feels like giving up.
Edit; if you are apart of the gTube mafia, kindly don’t respond. If you respond to a grieving father with sass, you aren’t needed here.
Our LO is back on cannula after a bunch of cpap round and we are trying to start feeds again. After so many false starts I can’t help but be worried she’s never gonna get this. She was taking close to full bottles months ago and now she can barely take 10ml’s.
The prospect of a gTube terrifies me, not for the surgery but the intubation. Last time was terrible for her, it took days to get off, she needed decadron. And I just don’t want to undo all the work we’ve been doing to treat her BPD.
They don’t send kids home with NG’s so we are caught between a rock and a hard place. The hospital is zero help for feeding and it seems like all the know how to do is place a gTube.
We moved closer to the hospital this week to try and increase our bottle attempts and it has been a disaster. I’m over all of this, I can feel the gTube mafia circling and I don’t know what else to do here but to give in which feels like giving up.
Edit; if you are apart of the gTube mafia, kindly don’t respond. If you respond to a grieving father with sass, you aren’t needed here.