Baby was born at 36+5 via emergency c section due to HELLP syndrome diagnosis. He made it clear pretty quickly he was NOT planning on being early. We’re now at almost 3 weeks in the NICU/SCN with our ONLY issue being reflux and occasional desats while eating from a bottle. He’s shown MASSIVE improvement in the past week. He’s been on 1/8 a liter of oxygen all week, and they finally decided yesterday to take it off except for feedings. He also took a full 60ml of his bottle yesterday with no desats. He’s on Prevacid, has had an ENT scope, an upper GI study, an Echo, and is having another fluoroscopy tomorrow. They’re still limiting what he can take by bottle (except once a day the SLP tries to give him more) and they put the rest through the NG tube, unless I’m there to breastfeed (I do that about 3x a day, he never desats on breastfeeds).
It feels like they’re progressing him SO slowly over a little thing like refluxing with a bottle. I’ve expressed that I’m willing to exclusively breastfeed until he goes to daycare in August. I don’t believe he needs supplemental oxygen anymore. Typically his desats are not drastic and he brings himself back up pretty quickly. Don’t all babies reflux?? Will they realistically fix this any time soon? I’m starting to get frustrated like we’re waiting around when this is an issue for which he could be sent home with a few modifications. My husband says be patient, but at this point, I want to pushback on the timeline and get my son home.
It feels like they’re progressing him SO slowly over a little thing like refluxing with a bottle. I’ve expressed that I’m willing to exclusively breastfeed until he goes to daycare in August. I don’t believe he needs supplemental oxygen anymore. Typically his desats are not drastic and he brings himself back up pretty quickly. Don’t all babies reflux?? Will they realistically fix this any time soon? I’m starting to get frustrated like we’re waiting around when this is an issue for which he could be sent home with a few modifications. My husband says be patient, but at this point, I want to pushback on the timeline and get my son home.