UPDATE: My son came home from the NICU after 46 days not currently on oxygen and not on a g-tube. He did not end up needing ECMO.
I had my son at 37+3 last Friday, March 10 in an unexpected c-section as a result of breech presentation discovered sudden low amniotic fluid when we went in to have an ECV.
He received an 8 at 1 min and 9 at 5 min APGAR scores. I had a minor hemorrhage during the c-section. He was taken to the level 2 NICU, diagnosed w/ respiratory distress syndrome and on CPAP then intubated and that gave him a pneumothorax; they added the first dose of surfactant and put in a chest tube. Then they put him in an ambulance to a Level 4 NICU to use a Jet and I got discharged early. He was diagnosed with pulmonary hypertension & a small PDA; he then changed to an oscillator and had his oxygen levels lowered for a while but now it’s 100%. Given another dose of surfactant. He has an IV / multiple PICC lines with various meds from heparin to fentanyl, Sildenafil and nitric oxide now. He’s also had 2 blood transfusions so far.
It’s been ups and downs. Positive prognosis after positive prognosis then today the most grim - ECMO. Are there ANY positive stories out there? Please - I’m desperate for some hope.
I had my son at 37+3 last Friday, March 10 in an unexpected c-section as a result of breech presentation discovered sudden low amniotic fluid when we went in to have an ECV.
He received an 8 at 1 min and 9 at 5 min APGAR scores. I had a minor hemorrhage during the c-section. He was taken to the level 2 NICU, diagnosed w/ respiratory distress syndrome and on CPAP then intubated and that gave him a pneumothorax; they added the first dose of surfactant and put in a chest tube. Then they put him in an ambulance to a Level 4 NICU to use a Jet and I got discharged early. He was diagnosed with pulmonary hypertension & a small PDA; he then changed to an oscillator and had his oxygen levels lowered for a while but now it’s 100%. Given another dose of surfactant. He has an IV / multiple PICC lines with various meds from heparin to fentanyl, Sildenafil and nitric oxide now. He’s also had 2 blood transfusions so far.
It’s been ups and downs. Positive prognosis after positive prognosis then today the most grim - ECMO. Are there ANY positive stories out there? Please - I’m desperate for some hope.