1 year old with gross motor delay and poor appetite. Constantly told everything is “fine”

[boanerges1989]

@ilovefriedchicken Thanks so much. We were denied the referral for an OT. Not sure if there are private ones here. Worth looking into.

 

[pasifika]

@boanerges1989 If I were in your position, I would focus on making meals super fun for her. No pressure at all.

A delay is not an emergency and most kids have one in some area at some time. If it gets serious, you will know. It's really hard when it's your first baby!!

 

[katrina2017]

@boanerges1989 This sounds so similar to my son. He’s 16 months. Low appetite, irritable, dark circles under his eyes. Dropped off his growth curve but still considered normal, minor developmental delays. I’m in Canada as well. We are getting blood draws soon to see if there’s a deficiency. Did you get labs done for your daughter?

 

[boanerges1989]

@katrina2017 So sorry to hear this. Can I ask what labs were ordered and if he is walking yet? I haven’t done labs yet. My daughter is now 16 months old as well. Not yet walking. I took her to a dietitian and occupational therapist (for above mentioned symptoms) and both wrote me off but they didn’t even watch her eat or check her physically. Finally, I took her to a chiropractor (which I was nervous about but should have taken her right from birth). Turns out her “galant reflex” is not yet integrated. If you read up about it you might want to consider seeing a chiro to check his reflex integration (there are several). They can affect the sensory experience and feeding, etc. if there is a way to private message on this app I would be interested in chatting. Seems like we are both worried and have few answers and very similar symptoms in our children. Very best of luck to you and your son.

 

[destroyed]

@boanerges1989 People are not only being kind...they are telling you the solid truth. I'm guessing that there is nothing wrong with your daughter. You first position a "grave issue"you see and then give evidence that she's fine. Your leg is a centimer short? What can that possibly have to fo with her? Or your husband's generic upset stomach?
I think you need to see a counselor and stop doing thr doctor dance for your daughter

 

[boanerges1989]

@destroyed Oh wow, and you are so smart! Can you not look at the bigger picture? One leg being a centimetre short caused for a tilted pelvis and herniated discs in my spine, all of which was preventable, and possibly genetic. Is it really a stretch to think that since my daughter has a gross motor delay and favours one side of her body that this might not be also the case for her? Is it insane to want to prevent my own child from having to physically suffer due to an issue that can be prevented early on? Mentioning all the details I can because I am desperate. You have zero empathy and understanding. The cruel and simplistic way in which you think is literally the same reason why the medical system fails us time and time again, congratulations to you!

 

[sofia555]

@boanerges1989 Maybe she needs a chiropractic adjustment? The exercises are a good thing but if something is out of place they won’t be as helpful.
Honestly she sounds like she’s making fine progress for her age, some kids, healthy as can be, don’t walk till later than that. And until she gets coordinated she can start with the same foot.

Babies don’t need solids that young. Until their molars come in the digestive enzymes that start the break down of solids aren’t present in their mouth. I’d breastfeed all she wants and only present food as a matter of interest.

I’m not saying all is well, but all may also not be that severe. Some kids don’t eat as much as others, and if she’s breastfeeding lots she’s getting all that she needs. Breastmilk is made to be all inclusive.

Optionally a second opinion.

 

[sunshine]

@sofia555 NO. Listen, do what you want, but chiropractic care is pseudoscience and what you’re saying is not supported by research, at all. (I’m a therapist). You’re also dead wrong on the feeding issues. Not trying to be mean but it breaks my heart to see a parent struggling with something real and getting terrible advice. OP, you’re going to have to fight. They aren’t wrong when they say milestones are within typical ranges, based on your report. Lip ties and such don’t mean much in terms of problems. I would definitely ask about ENT issues, allergy testing, etc. I would specifically ask for an Occupational Therapy evaluation, look for feeding clinics/feeding specialists (OTs and speech therapists commonly) and ask about sensory processing. I’m also happy to respond to PM’s. Good luck.

 

[boanerges1989]

@sunshine Hey, thanks for responding. Just an update since you’re a therapist (physio?) might help you to know. I took her to an OT and dietician, both wrote me off. I finally took her to a chiropractor who was the only one to evaluate for reflex integration. Turns out her galant reflex is not integrated and this can lead to many issues including sensory processing. Not only this, but the chiro told me that mouth ties ALWAYS make for tight hips. They actually run tension from mouth to feet. My daughter’s sacrum and hips are also affected. Her whole body is full of tension. After 1 adjustment, the same day, she was able to squat and stand independently. I appreciate your concern about chiros but I wasted 15 months with many professionals who were not able to help to any degree, most gaslighting me. At least now I have some sort of idea.

 

[jayy18]

@boanerges1989 I suggest cross posting this to r/askdocs. Include her most recent length and weight measured at the pediatrician’s office and the exact age she was (months + weeks) when the measurements were taken.

 

[boanerges1989]

@jayy18 Thanks for commenting. I already posted there with zero replies. Will wait for replies before adding very personal details. Thanks again.

 

[katrina2017]

@boanerges1989 How’s your baby doing now? We’re currently dealing with the same issue

 

[boanerges1989]

@katrina2017 Sorry for the late reply. Not on this app often. She’s doing much better. After taking her to a chiropractor, she was finally able to squat, then stand independently and is now walking. She also started to eat more and varied foods after the chiro worked on her jaw and cheeks. How is your baby? Did you find something in particular that helped?