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@akj They have Facebook pages as well, but I recommend caution when joining them because HIE is such a huge spectrum and you see the best and the worst cases there. Sometimes I’ll see posts that cause me to spiral a bit because the wait and see game of HIE is so terrible and I’m going through...

@1stjohn0666 We don’t live near family, so we use our vacations to see them. My parents live in Florida, which is a popular vacation area so it’s easy to have a vacation there and do vacation-y things together and not just sit at home. We always spend Thanksgiving then (except this year due to...

@delisyn On the topic of “sick baby” - our NICU had a foundation that helped with a lot of costs. One such cost was paying for parking. In the informational packet, there was a sticker with the full logo for the foundation, and part of the name was “for critically ill children”. Seeing that...

@blackbox My son’s doctor told me, “Unfortunately someone always has to be the statistic. We are just so sorry it had to be you.” That resonated with me and helped me with the logic of it not being my fault, but I still feel guilty that my body failed my son and he had to have his NICU stay. I...

@daddydubya We call the one loud wail during sleep a battle cry. It is very startling.

@bongoon Happy cake day to you!

@bacondoughtnuts No problem! I’m glad I can help!! Best of luck to you with your little one! 😊

@bacondoughtnuts I have been counting the shart diapers as just wet diapers, because for our son at least, they’re wet from his urine output and don’t have enough poop to count as a poop diaper. He makes probably about ten wet urine diapers a day, but he also eats a ton and has always been on...

@straykat Seconding this - especially the poop/shart constantly thing. My husband and I even sing “Baby Shart” (to the tune of “Baby Shark”) whenever it happens, which is more than once a day.