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@jcrook The first comment my mom made about my son’s adjusted age was this week. He turned 3 in March. People just “didn’t get it” when I explained multiple times when he was an infant. I gave up trying to justify anything and would just say “he’s developing appropriately for x adjusted age,” or...

@imchad It depends on why they need it, my child would have Swiss cheese bones if not for doing formula and breastmilk. If it’s just for weight gains you can try to fight it but imo it’s not always worth it because they do gain better with fortification,that’s why they do it. Push for why vs...

@stop_cern_idea My four year old has resisted any suggestion that we have names beyond “Mama” and “Daddy” even when we insist. He also got upset when grandma said her name was something other than “Grandma” and corrected her 🤣

@moncus My guy was really delayed on pointing but I realized I didn’t model it a lot so we worked on that and he picked it up eventually. My guy has been on the low end of normal for word count app along so I don’t have any advice there other than read together a lot and narrate what you are...

@gloryriver We also did Medicaid as secondary and I think in nearly four years we’ve only paid a $26 prescription copay Medicaid wouldn’t cover for all of our 24 weekers medical needs including a several million dollar NICU stay

@ryantheirish Does leaving ever get easier? No not really, the only time I left the hospital in 121 days with relief was the day we brought our 24 weeker home.it was like breathing out a breath I’d been holding that whole time. Do you have anyone who can take care of your animals so you could...

@bytor I had my 24 weeker in 2020, there’s some bridges we burned that I’m glad, the trash took itself out. The pandemic truly made it so much worse, Preemie isolation has always been a thing but now it seems like the floor is in hell and people are still upset that they even have to think of...

@lumatt21 So amazing! Happy homecoming! Enjoy your unlimited snuggles! Your story reminds me a lot of ours minus the pulmonary hypertension. 24+1, 1.5 lbs, went on a tour of the various ventilators, PIE, intestinal perforation, BPD, home on oxygen for a long time. He’s two adjusted tomorrow (I...

@baohomotorprovn250932 I can’t speak specifically for what to expect or how to manage other kids, as I only have my one, but I know that “visiting” varies by hospital, you should find out now but stay on top of any changes that may or may not happen if pandemic restrictions ease. Our hospital...

@loreec We had a pediatrician preemptively fat shame our one year old 24 week preemie. Who literally never had any baby fat. She told us to severely cut his milk intake and switch to skim so he “doesn’t end up too big.” We disregarded that advice, and frankly I’m still horrified at it. He’s four...