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    They called us in for the conversation we very NICU parent dreads

    @szilvia Sorry you’re going through this. Our ex 24 weeker also had rotating care teams during our 150 days of stay at NICU. Each doctor had his or her own styles, some preferred conservative treatments with others were a little more aggressive. But one thing they all did was giving us clear...
  2. L

    We are finally home after 150 days in NICU (born 24+1, 1.5 lbs, had PIE, PDA, ROP, pulmonary hypertension and BPD, left at 10 lbs and 1/8 L oxygen)

    @trancamhongkgv Thank you! I have been following your NICU stories, really similar to ours, giving me hope at the time. So glad your LO is doing so well!
  3. L

    We are finally home after 150 days in NICU (born 24+1, 1.5 lbs, had PIE, PDA, ROP, pulmonary hypertension and BPD, left at 10 lbs and 1/8 L oxygen)

    @cloud7079 Thank you! I am glad you find it useful. I am sorry you are in this right now, but hang in there and things will most likely get better. Those little ones are little warriors, with the help with modern medicine, they will do amazing things. When we were at the spot you are now five...
  4. L

    We are finally home after 150 days in NICU (born 24+1, 1.5 lbs, had PIE, PDA, ROP, pulmonary hypertension and BPD, left at 10 lbs and 1/8 L oxygen)

    We are home for 3 days now and finally got some time to write something. Little Aaron was born at 24 + 1 after my wife's sudden placenta abruption and was intubated immediately. He was on various ventilators during the first month of his life (1 week on HFO, 3 weeks on JET, and 1 week on CMV)...
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