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  1. C

    We are finally home after 150 days in NICU (born 24+1, 1.5 lbs, had PIE, PDA, ROP, pulmonary hypertension and BPD, left at 10 lbs and 1/8 L oxygen)

    @lumatt21 What a cutie! Look at those cheeks!!! Those nasal cannula stickers take me back, my son was on nasal cannula for 2 months post-NICU (BPD). He was in NICU for just over 3 months & now he’s a rambunctious 2 year old who is climbing everything and making me read him The Very Hungry...
  2. C

    Another day, another question

    @pena150695 Do the CT scan, and the genome testing. Doctors don’t request these tests unless there’s a reason—-and your son is a complex case and they need all the information they can get to help him, especially as it seems his lungs are getting worse.
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