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@jtmorris Is your husband a hands-on parent in other ways? Does he have ADHD or any other condition that impedes his ability to remember details/juggle complex tasks? Does he recognize the severity of his forgetfulness or is he brushing it off? Is he secretly trying to trial her off it?

@shamila Aww she’s a little peanut! Sorry that you’re in the throes of NICU life. My daughter is now 3. She had HLHS (though it was downgraded after her first surgery) and coarctation of the aorta. She required two open heart surgeries but is now heart healthy. Best of luck to your mini!

@shamila Which CHD? How is your little one doing?

@smta I know a lot of kids with congenital heart defects who were on ECMO for a time and successfully came off! (My daughter had CHD, a stroke at birth, and extended intubation, though no ECMO.) I’m sorry you’ve had such a stressful week. Please keep us posted on how little one progresses ❤️

@baohomotorprovn250932 Hello! My CHD baby was my first, so I cannot give you insight into managing with older kids. She was in the hospital for 5 weeks for her first surgery and 3 for her second. We lived 45 mins away. We stayed in a hotel for the first two weeks after birth, which was...

@kingskid001 Hey, I peeked at your post history, and it sounds like you’ve had a rough go of it during pregnancy. That, coupled with the trauma of your daughter’s PICU stay, might have you reeling with a sense of not being in control. I don’t have any good advice for you, other than to say that...