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@lorenzomcgoo Mine likes milk of magnesia better and then she doesn’t have to drink a bunch of water. We do 7.5ml once a day with a syringe. A doctor can give you a dosage and it’s easy to play around with.

@spread_the_gospel_online Yes the reactions of others can be so frustrating. My MIL once told me “maybe you’ll do things different with the second kid” as if we caused this somehow through poor parenting. I hope the appetite stimulant works for you! We had success with it initially and I know...

@wanderingsheep They took some tissue biopsies when they did the upper endoscopy. Her GI said he doesn’t have any reason to suspect an allergy, and conceded that a food intolerance could be possible but there’s no way to diagnose except an elimination diet… which won’t work without starving her...

@michael1958 Thank you! It is a gtube. And she does still eat by mouth, just not enough, and progress with feeding therapy is soooo slow (although it is progress).

@percyjeffries80 I love your idea about the doll! That would be a great gift after her surgery. And hydrating her when she’s sick… wow that will be so helpful. Illness is so tough on her, it’s the biggest battle to get her to eat and drink. I have a feeling we are all going to appreciate the...

Would love to hear positive stories, advice, anything about g-tubes. I don’t know anybody with a child like mine. Lifelong history of not eating enough, pickiness, failure to thrive. They finally concluded that we’ve done all the testing and trialing we can, and that she needs a g-tube to grow...