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@kimhimmel We came home Friday after 119 days in the NICU. We’re still working on feeds but overall so far so good. She didn’t need any tubes, and no oxygen! I will say, during our stay it felt never ending like we were never going to make it home. But now that we’re home, it feels like we were...

@kimhimmel Yes, first pregnancy too. I was told I was being overdramatic and that pregnancy was painful. They said I’d be in pain the rest of my pregnancy and that it was “just Braxton hicks”. Despite my cervix dilating and having contractions every 3 minutes. I was given multiple meds to try to...

@kimhimmel My little girl was born at 27+3, singleton, birth weight was 2 pounds 4 ounces. She got down to 1 pounds 12 ounces and took about 2 weeks to get back up to the 2 pound mark We’re not sure what caused her to be born, all we know is preterm labor and cervical insufficiency but not...

@nairna Thats where I’m at!! I’ve begged them to make her feel hungry too. She’s almost constantly being fed through the NG with whatever is left of her bottle, so in my eyes why would she want to wake up and take a bottle if she isn’t even hungry. They finally said we can try it tonight but if...

@repentandtrustinjesus I definitely think she will thrive at home. I keep saying she doesn’t know what hunger feels like on a 3 hour schedule they refuse to do ad lib because she’s “not drinking enough yet” but they feed her so much I just feel like she’s full and they’re over feeding her plus...

@bborn We’re present as much as we can be. We both work full time and we live 1.5 hours from the hospital. Everyday we have off work we are there for 10-12 hours. I asked for the NG, they’re worried it’ll make her acid reflux worse if she has it for much longer and they said pediatricians are...

@aldaelen She’s taken up to 75% of her bottle but doesn’t stay there. She averages about 50-60% so we’re at a loss of whether she’s just going to slowly get there. I’d hate to bring her home on a G tube and have the surgery and then her thrive at home. I wholeheartedly feel like she just needs...

@aldaelen I appreciate that advice because I actually asked if we could go home on an NG instead! I too thought it’d be less invasive but it makes sense that it would worsen her reflux since it keeps that sphincter open at all times

@dece870717 Yes it’s literally traumatizing. A part of me wants another baby so we get that good experience. A part of me is scared this will all happen again and makes me want to never have another child. It’s hard. It’s so intimidating but I’m hopeful with time she will build up the stamina to...

@dece870717 Thank you! How long as your LO had a g-tube? Is it difficult to manage? I try to stay positive, but this has just left us defeated. This whole time we felt like we jumped through one hoop successfully and were going to have a relatively normal baby at the end of it all. This is my...

@trusaders I was thinking that too. Once we’re home I think we will be less stressed and it’ll be her parents always feeding her not a variety of nurses. We won’t be as pressured for her to take bottles because we’re already home. We’ve tried our best to stay patient but it’s making us stir...

@trusaders How long did you work on feeding before they decided to send you home with the g-tube?

@archhumanmichael My baby also does much better at the breast and I’m terrified of her getting an oral aversion. They just keep saying to wait for it to click and it doesn’t seem like it’s going to

@lostandinsecure Well when you put it that way I’m ready for her to have the g-tube now lol

The doctor called today and said in a couple weeks we may be discharged with a g-tube. I feel like this is the end of the world for us. We’ve been working on feeding for 4 weeks and our girl is 41+5 now, born at 27+3. They said around 44-45 weeks if she’s not better with eating we will be...

@sarah5 How long did it take her to outgrow the tiredness from feeding? That’s where we are right now and it seems like she’ll never have the energy to eat so we can go home