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@be_a_light And just a side note to add… her hospital back in the Midwest was associated with the Mayo Clinic so we had access to any specialist that we needed

@be_a_light Unfortunately I live on the east coast and to even get in to see her various other specialists (pulmonologist, cardiologist, gastroenterologist, spinal surgeon, ent, nephrologist, and even physical or feeding therapists) I have to make appointments nearly a year (8-11 months for...

@be_a_light And I was answering as a Nicu parent who is still working on getting a diagnosis. I’m not trying to “skip the line” or “make all of the patients who scheduled appointments a year ago wait” even though my daughter wasn’t born a year ago so how am I supposed to have scheduled by...

@be_a_light I’ve gotten plenty of “proper” referrals for months I’ve been trying to find any appointments even a year and a half out. But you wouldn’t know that. You also wouldn’t know that every single one that I’ve been referred to has told me the exact same thing “we can’t see the little one...

@ozy20 We were told to simply go to the er if you’re still trying to rule rop out. Our insurance won’t allow ophthalmology to check our 10 month old without being either cleared for rop or referred to an rop specialist, but the awesome person I spoke with said that getting it checked by the er...