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@this_dot I understand the g-tube seems like am extreme option. Feeding should be easy. After a two week hard learning curve, we came to love the g-tube. We could dial in calories and not pressure my kiddo to eat. She had her tube for two years. While she did gain eating/drinking skills, she...

@carson If possible, have a primary nurse. I attended rounds most days but had questions about the terms so I asked our primary nurse and she kindly answered all of them. Have one person designated as point person for family/friend communication. It can be difficult to answer the same questions...