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@ozy20 Yes, we have diminished peripheral vision due to ROP treatment. He has adjusted quite well and you could barely tell nowadays. Untreated ROP can absolutely cause similar problems. I'd definitely recommend trying to get another check; hopefully insurance will cover it if she has clinical...

@dmhanson511 I have no idea at this point what's effective long term and what's going to ruin his life for all time. I'm so tired of trying to make children eat. My bad eater has a feeding aversion and still takes 99% of his calories from a bottle. With his twin, who is generally a decent...

@jsw3883 We worked with OT and SLP. He does great with bottles now, but won't eat solids. I kinda wish we'd gone ahead with the g-tubeb it's been 3 years of feeding therapy.

@uga1785 Not when the child lives at the hospital. If they aren't in the family residence, the family income doesn't matter. That's why it has to be over 30 days.

@joeestacy Have you spoken to the social worker about Medicaid and/or Social Security Disability? There are some conditions that merit what's called an "on the record" decision, which means you don't have to go to court- you can simply file for Medicaid. A >30 day hospital stay qualifies in a...