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@mike84761 This camera is amazing isn’t it? We just ordered one for the Springfield MO NICU since they don’t have pediatric ophthalmology. We can now use the equipment when we fly down once a month to see their babies!!

@ozy20 Ok, so if she was checked then we know the cause isn’t one of the major major problems or it would have been seen (like Coloboma or congenital cataracts). ROP can cause some peripheral vision issues, but that is usually from the treatment of laser or injection. However, these things can...

@ozy20 What was baby’s gestational age? Most babies are no longer at risk for ROP at age 32 weeks. For example, my baby was not even on the list for us to check because she was born at 32 weeks 0 days. Of course we checked her anyway as we were checking on the baby in the next room and of course...

@ozy20 Are you noticing a loss of peripheral vision as in the vision was there before and now it isn’t, or are you noticing a deficit in peripheral vision as in baby maybe never had great peripheral vision? ROP would be there since birth so it would be more like a deficit that was always there.

@ozy20 Ok, great! Unfortunately the drive is not unusual for pediatric ophthalmology as we have some patients drive from 3 states over. Good luck!!

@ozy20 ROP treatment can cause peripheral vision issues where the laser spots or injections spots are. It doesn’t sound like your infant was treated though if you were needed more follow ups. Was treatment administered? What is the insurance wanting in order to do the follow up? Rarely in...

@audrey32 All of our appointments are a year out also. NICU follow ups are one exception as well as things like born to a mother with active herpes, child with high prescription that breaks or loses their glasses, something in the eye. We do see all the babies in both the NICU and PICU that have...

@audrey32 I understand where you are coming from as a patient. But most hospitals do not have pediatric ophthalmology on staff. My office is the only office within a 5 state area. We fly 2-3 times per week to cover another NICU. That’s why it’s not a good reason to take time and money to go to...

@audrey32 I was answering as an ROP nurse for 25 years.

@audrey32 That is not a way around the system. We are not going to make all of the patients in our office who scheduled a year in advance to wait because you didn’t get the proper referral.