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@sophiepoeta We came home on 1/2 liter and it fluctuated between 1/4 and 3/4 depending on his pulse ox readings. BPD, PDA closure, IUGR, g-tube. He came home at adjusted ~6 months and came off it completely 8 months later. It wasn’t a gradual ween. He was at the same level for the longest time...

@catrinabrosko Our son has IUGR and is now 3.5 years old. He’s doing great except for weight gain, though it’s suspected due to his CP diagnosis. He’s getting taller but not putting on anything. His diet is closely monitored and he eats 2k calories a day. His pediatrician and dietician are...

@stay_tattd4_lyfe Have cake for both their real birthday and their adjusted! If they don’t eat it, they’ll at least make a mess which is fun in its own right. Birthdays don’t depend on milestones, so don’t let that stop you from celebrating.

@alusuw We were given a journal at the beginning of his stay and kept up with the whole time. We mostly just noted what happened, who the doctors and nurses were, and little milestones like “first bath”, “first hold” etc. The journal was for 50 days and over our stay we went through 5 of them...

@naturalsinner Our son was also born at 490 grams! He turned 3 a month ago. He’s never even touched a traditional growth chart, but is still gaining on his own terms.